{"id":130042,"date":"2024-04-08T12:06:00","date_gmt":"2024-04-08T15:06:00","guid":{"rendered":"http:\/\/ww16.ce.gov.br\/saude\/?p=130042"},"modified":"2024-04-08T12:25:44","modified_gmt":"2024-04-08T15:25:44","slug":"hgf-neuromielite-optica","status":"publish","type":"post","link":"https:\/\/ww16.ce.gov.br\/saude\/2024\/04\/08\/hgf-neuromielite-optica\/","title":{"rendered":"Neuromielite \u00d3ptica: HGF \u00e9 refer\u00eancia no tratamento da doen\u00e7a rara que pode levar \u00e0 cegueira"},"content":{"rendered":"

\"\"Cerca de 110 pacientes com a condi\u00e7\u00e3o s\u00e3o atendidos pela equipe de Neurologia do HGF<\/em><\/p>\n

\u201c\u00c9 uma condi\u00e7\u00e3o extremamente grave e devastadora. Sem diagn\u00f3stico, pode levar a pessoa a evoluir para a cegueira completa ou paralisia rapidamente\u201d, destaca a neurologista do Hospital Geral de Fortaleza (HGF)<\/strong>, Milena Pitombeira, sobre o Dist\u00farbio do Espectro da Neuromielite \u00d3ptica<\/strong>. Considerada rara, a doen\u00e7a autoimune provoca surtos graves e recorrentes no sistema nervoso central, que podem resultar em incapacidades irrevers\u00edveis.<\/p>\n

Vis\u00e3o turva, dor intensa nos olhos, perda de vis\u00e3o, fraqueza muscular dos membros, perda de sensibilidade e do controle dos esf\u00edncteres, n\u00e1useas, v\u00f4mitos, solu\u00e7os persistentes por mais de dois dias e sonol\u00eancia excessiva est\u00e3o entre os sintomas da doen\u00e7a. \u201cOs ind\u00edcios podem variar de acordo com a \u00e1rea afetada do sistema nervoso central\u201d, explica a neurologista.<\/p>\n

Francisca Elisa Pereira Lima, de 55 anos, paciente do Ambulat\u00f3rio de Neurologia do HGF, relata que a doen\u00e7a se manifestou algumas vezes e de formas diferentes. \u201cJ\u00e1 apresentei alguns sintomas, quando mais nova, que hoje talvez possam indicar a presen\u00e7a da doen\u00e7a, como por exemplo, uma dor que causou paralisia moment\u00e2nea no meu bra\u00e7o, mas a certeza do diagn\u00f3stico apareceu quando acordei uma manh\u00e3 sem enxergar\u201d, relembra.<\/p>\n

\"\"Em tratamento no HGF, Francisca Elisa Lima conseguiu diagn\u00f3stico ap\u00f3s perder parte da vis\u00e3o<\/em><\/p>\n

O diagn\u00f3stico tardio ocasionou cegueira parcial em Francisca. \u201cTenho vis\u00e3o central, mas n\u00e3o perif\u00e9rica. Ainda bem que pude ter acesso ao HGF antes de outro surto\u201d, afirma. Apesar da dificuldade, a paciente diz estar tranquila. \u201cHoje fa\u00e7o o tratamento, tenho um c\u00e3o guia, a Fiona, venho regularmente \u00e0s consultas e n\u00e3o tenho mais medo\u201d.<\/p>\n

Com causa ainda desconhecida, a neuromielite \u00f3ptica<\/strong> pode se manifestar ap\u00f3s uma infec\u00e7\u00e3o ou estar associada a outra patologia autoimune<\/strong>. No HGF, equipamento da Secretaria da Sa\u00fade do Cear\u00e1 (Sesa)<\/strong> reconhecido como Centro de Aten\u00e7\u00e3o Especializada em Doen\u00e7as Raras<\/strong>, aproximadamente 110 pacientes com a condi\u00e7\u00e3o recebem assist\u00eancia no servi\u00e7o de Neurologia. O atendimento \u00e9 agendado ap\u00f3s triagem do servi\u00e7o. A porta de entrada dos pacientes \u00e9 realizada via Central de Regula\u00e7\u00e3o.<\/p>\n

Diagn\u00f3stico<\/h3>\n

O diagn\u00f3stico \u00e9 baseado no hist\u00f3rico detalhado do paciente com avalia\u00e7\u00e3o cl\u00ednica, na qual s\u00e3o analisadas, al\u00e9m do exame espec\u00edfico de sangue, a presen\u00e7a de sintoma ocular, neurite transversa (inflama\u00e7\u00e3o na medula espinhal em toda sua largura) e v\u00f4mitos e solu\u00e7os incessantes.<\/p>\n

\u201cPor ser um Centro Especializado em Doen\u00e7as Raras, o HGF disp\u00f5e do teste sangu\u00edneo, o anti-AQP4-IgG, considerado uma das formas mais confi\u00e1veis para diagnosticar a doen\u00e7a\u201d, esclarece Pitombeira.<\/p>\n

Apesar da import\u00e2ncia do diagn\u00f3stico precoce para o controle da doen\u00e7a, o desconhecimento ainda \u00e9 a principal barreira. \u201c[A doen\u00e7a] Pode ser muitas vezes n\u00e3o detectada porque alguns sintomas se assemelham a outras condi\u00e7\u00f5es, como a Esclerose M\u00faltipla, por exemplo\u201d, explica a neurologista.<\/p>\n

Acompanhamento especializado<\/h3>\n

Neuro-oftalmologista do HGF, Matheus Rossi aponta a import\u00e2ncia do acompanhamento especializado para as pessoas com a condi\u00e7\u00e3o rara, destacando a necessidade de exames espec\u00edficos, como a tomografia de coer\u00eancia (OCT), que avalia o funcionamento do olho, da retina e do nervo \u00f3ptico.<\/p>\n

\u201cPessoas com essa condi\u00e7\u00e3o podem ter perda dessa regi\u00e3o do olho e o exame pode ajudar at\u00e9 a prever o progn\u00f3stico, a recupera\u00e7\u00e3o visual e como o paciente vai se comportar\u201d, ressalta o m\u00e9dico. \u201cTem pacientes que ficam com sequelas mais graves, mas hoje em dia, com esses tratamentos, a gente tem uma chance melhor de recupera\u00e7\u00e3o e at\u00e9 o retorno de uma vis\u00e3o muito funcional para fazer as coisas do dia a dia\u201d, complementa.<\/p>\n

\"\"Os pacientes de neuromielite \u00f3ptica s\u00e3o atendidos por equipes multidisciplinares dos servi\u00e7os de Neurologia, Oftalmologia e do Centro de Infus\u00e3o do HGF<\/em><\/p>\n

Apesar dos avan\u00e7os no tratamento da doen\u00e7a, a neurologista\u00a0Milena Pitombeira explica que ainda n\u00e3o h\u00e1 medica\u00e7\u00f5es formalmente aprovadas e liberadas no Brasil, pelo Sistema \u00danico de Sa\u00fade (SUS), para tratar a condi\u00e7\u00e3o. \u201cS\u00e3o utilizadas medica\u00e7\u00f5es imunossupressoras (que alteram a imunidade da pessoa) para controle da doen\u00e7a\u201d, pontua a neurologista. De acordo com a m\u00e9dica, at\u00e9 2019, n\u00e3o havia sequer abordagens terap\u00eauticas medicamentosas e o tratamento era baseado em acompanhamento com fisioterapia.<\/p>\n

No HGF, os pacientes s\u00e3o atendidos no Ambulat\u00f3rio de Neuromielite \u00d3ptica<\/strong>, que funciona \u00e0s quartas-feiras pela manh\u00e3. No espa\u00e7o, eles contam com suporte de uma equipe multidisciplinar formada por m\u00e9dicos neurologistas, m\u00e9dico fisiatra, fisioterapeuta, fonoaudi\u00f3loga, nutricionista, enfermeiros, neuropsic\u00f3logo e odont\u00f3logo. H\u00e1 ainda apoio dos servi\u00e7os de Oftalmologia e Centro de Infus\u00e3o.<\/p>\n","protected":false},"excerpt":{"rendered":"

Cerca de 110 pacientes com a condi\u00e7\u00e3o s\u00e3o atendidos pela equipe de Neurologia do HGF \u201c\u00c9 uma condi\u00e7\u00e3o extremamente grave e devastadora. Sem diagn\u00f3stico, pode levar a pessoa a evoluir para a cegueira completa ou paralisia rapidamente\u201d, destaca a neurologista do Hospital Geral de Fortaleza (HGF), Milena Pitombeira, sobre o Dist\u00farbio do Espectro da Neuromielite […]<\/p>\n","protected":false},"author":767,"featured_media":130045,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"categories":[496],"tags":[2207,130,896,4243,2385],"class_list":["post-130042","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-hgf","tag-doenca-rara","tag-hgf","tag-neurologia","tag-neuromielite-optica","tag-oftalmologia"],"acf":[],"yoast_head":"\nNeuromielite \u00d3ptica: HGF \u00e9 refer\u00eancia no tratamento da doen\u00e7a rara<\/title>\n<meta name=\"description\" content=\"Considerada rara, a doen\u00e7a autoimune provoca surtos graves e recorrentes no sistema 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